Click here to view Danielle’s Fundraising Page
“My Story

On the 27th April 2025 I will run the TCS London Marathon to raise funds for the Oesophageal Patients’ Association (OPA) to repay their kindness for supporting me during my own cancer treatment and recovery and to help them raise vital funds to provide emotional support and dietetic advice to people living with oesophageal cancer and to spread awareness of this cruel condition.

My connection to Oesophageal Cancer and Running

I began running in 2016 and love the physical and mental challenge of it. I started from running parkrun and built up my fitness to run the Manchester Marathon in autumn 2021. At the peak of my fitness in May 2022, I was diagnosed with oesophageal cancer completely out of the blue after noticing a change in my swallow.  It was devastating as I have no family history and no explanation why I came to have a 6cm squamous cell carcinoma tumour in my mid-oesophagus. Waiting for the results of the diagnostic scans and MDT reviews was the most fraught and anxious time of my life. Running helped me through this: it was no longer about training to get faster times or run further, my goal was to stay fit for treatment and to look after my mental health.  Thankfully, I had been diagnosed early before there was any spread and qualified for curative treatment. I had chemo and radiotherapy in summer 2022 which was brutal – I suffered radiation induced oesophagitis and could no longer eat or drink so needed a feeding tube for nutrition and hydration and morphine to manage my pain. I kept active and the swelling and pain reduced after 6 weeks so I was able to complete The Great North Run in September 2022 with an NG tube 10 days before I had my Ivor Lewis oesophagectomy.  I had to hang up my running shoes for a few months to heal from the massive procedure, relearn to eat and get enough nutrition and rebuild my strength to be able to run again. Getting back to running has helped me regain fitness and motivate me, when I improve at running I know my body is healthy. It has been a frustrating and long recovery at times but I am now heathy enough to have run a half marathon again and my times at other distances are getting quicker and close to where I was pre-surgery. My team at the hospital are amazed with my recovery and were so happy for me when I brought them my GNR 2024 medal to clinic to show them. The hospital dieticians are thrilled to be giving sports nutrition advice to a cancer survivor too! I am ready for this marathon challenge!

My recovery has been so positive thanks to my wonderful partner Paul and my children; my friends, work and Scout group; cancer support groups; the incredible team at St James’ hospital, Leeds; and many wonderful charities like the OPA who have provided me with information and support along the journey. At the start of the surgical recovery, I was given a lot of reading material by the OPA which helped me so much when I was learning to eat again. The OPA card that informs restaurants of my limited stomach capacity or that I might need to use their disabled toilets was so helpful to me. When I received an email from the OPA in October looking for people to run TCS London Marathon 2025 for them who had ambition to run the distance, had a personal connection to oesophageal cancer and who would be committed to fundraising, I felt that I would be a great candidate for this and I am thrilled that they have chosen me to run for them and hope to raise them lots of funds! 

Please support me on my run and fundraising for my cause. If you are able, please sponsor me any amount is gratefully received but I understand times are hard so if that’s not possible then keep encouraging me as I keep building up my mileage and please share this page and spread some information which may lead to a life-saving early diagnosis for someone else. Not all oesophageal patients are as fortunate as me. :’(

Thank you for visiting my fundraising page and for your support

Danielle xx”

Share your love, appreciation and best wishes through the OPA Christmas Cards.

We have 12 beautiful designs for you to chose from, which you can buy separately or a pack of full designs!

There is a card for everybody, have a browse on the OPA Shop.

https://opa.org.uk/product-category/christmas-cards/

The Annual Reflux Disease Awareness Week is from 20th – 26th November 2023, which marks an essential moment in our commitment to promoting awareness and understanding of gastro-oesophageal reflux disease (GORD). This will continue to urge people to Get Educated, Get Evaluated and Get Treated for Acid Reflux.
During this dedicated week, we aim to explain the impact of GORD on individuals’ lives, emphasising the importance of early detection, management, and support. As we approach this significant event, we invite everyone to join us in promoting a community that is well-informed, supportive, and dedicated to improving the lives of those affected by reflux disease.
How can you get involved?
Here are a few things you can do to help educate others and raise awareness of GORD.
Together, let’s raise awareness and make a positive impact on the journey towards better understanding of Reflux Disease.
Many thanks in advance for your continued support.

These packs are made to be displayed throughout your local GP Surgeries, Hospitals, Library’s, your place of work etc.

In this pack you will receive:

  • Display stands to accommodate the booklet/leaflet
  • 5 x Reflux Disease Booklet
  • 5 x Reflux Disease Leaflet
  • 5 x LINX Leaflet
  • 5 x RefluxUK Leaflet
  • 5 x RefluxStop Leaflet
  • 5 x Fundoplication Leaflet
  • 5 x Barrett’s Oesophagus Leaflet
  • 5 x Dumping Syndrome Leaflet
  • 5 x Bed Wedge Pillow Leaflet

These packs can be ordered from the OPA Shop.
“Place a Pack” – OPA Acid Reflux Awareness Pack – The OPA

In this pack you will receive the following:

  • Reflux Disease Booklet
  • Reflux Disease Leaflet
  • LINX Leaflet
  • RefluxStop Leaflet
  • RefluxUK Leaflet
  • Fundoplication Leaflet
  • Barrett’s Oesophagus Leaflet
  • Dumping Syndrome Leaflet
  • Bed Wedge Pillow Leaflet

This pack is free of charge to order from the OPA Shop.
Acid Reflux Awareness Pack – The OPA

Share your love, appreciation and best wishes through the OPA Christmas Cards.

We have 12 beautiful designs for you to chose from, which you can buy separately or a pack of full designs!

There is a card for everybody, have a browse on the OPA Shop.

https://opa.org.uk/product-category/christmas-cards/

In this issue, you can catch up on all things new…

  • OPA wins Healthcare Support of the Year Award 2023/24
  • Awareness Campaign Update
  • OPA Shop
  • Fundraiser Events
  • Teddy Bears
  • London Meeting
  • Christmas Cards

and lots more…

Click here to read, enjoy!

Thank you to CP Hart Bathrooms, Carolyn, Deb and Team for supporting our OPA London Meeting and providing a meeting room.

The presentation in London on the 16th of September given by Joanna Taylor, Oesophagogastric CNS, can be downloaded from the links below in Microsoft Powerpoint and Adobe PDf format.

Thank you to all that attended.

Download the presentation as PDF

Download the presentation as Microsoft Powerpoint

 

The Government has confirmed that NHS England cancer targets are to be streamlined, moving from 10 performance standards to three from October.

The new guidelines will move away from the “outdated” 2-week wait target, the Government said, which will be replaced with the Faster Diagnosis Standard.

Currently, anyone who is referred urgently by their GP with suspected cancer must be seen by a specialist within 14 days.

The Faster Diagnosis Standard was initially introduced in April 2021 but has been under “rigorous consultation”, according to the Government. It aims to diagnose 75% of people with cancer at an early stage, as well as cutting down the time between referral and diagnosis to reduce anxiety for patients. It also supports a goal outlined in the NHS Long Term Plan to have 55,000 more people surviving cancer for 5 years or longer by 2028.

Continue reading…