69 councils have improved their websites following a MoneySavingExpert.com (MSE) campaign. Yet it’s crucial for carers who thought they weren’t eligible due to councils’ misinformation to check again, to make sure they’re not missing out on vital support.

MSE’s ‘councils that couldn’t Care less’ investigation (published in January 2026) revealed that one in five council websites in England and Wales – including seven London boroughs – displayed incorrect qualifying criteria about the live-in Carers Council Tax discount. This had potentially been the case since 2013 when eligibility criteria was extended.

This likely deterred a decent chunk of England and Wales’ up to five million unpaid carers from claiming, meaning they’d typically missed out on between £500 and £1,000 of support each year.

However, in the four months since publishing our investigation and contacting the councils individually, all 69 getting it wrong have significantly improved their online information, so that unpaid carers – some of society’s unsung heroes – are far less likely to miss out.

Martin Lewis: ‘Carers who’ve been rejected before should try again’
Martin Lewis
Martin Lewis
MSE founder & chair

Carers are some of society’s most unsung heroes. They’re already hard done by, so even one council listing the wrong information – which risked deterring carers from claiming much needed help – would’ve been one too many. The fact our investigation found dozens of councils were doing it, and most likely since 2013, was a disgrace.

I am thankful though that in the four months since we launched our report, all the councils identified in our investigation have now fixed the mistakes and made things clearer – this prompt action helps.

However, it remains the case that over the years, many unpaid carers have likely been put off from applying, or wrongly rejected, for this support. So, I would encourage all carers who thought they weren’t eligible after previously checking councils’ websites to check again (use Carers UK’s help pages if you’re unsure).

If you did miss out due to councils’ poor info, ask for a backdated discount to the point of first eligibility, though different councils have different rules.

‘This is a positive change enabling carers to better access financial support’

Helen Walker, chief executive at the charity Carers UK, said: “We’re incredibly grateful to MoneySavingExpert and Martin Lewis for shining a light on this issue because every penny counts for unpaid carers. Caring often brings significant extra costs, including higher energy bills, and many carers have to reduce their working hours or give up work altogether to care, making it even harder to make ends meet.

“The fact that all 69 councils highlighted have corrected misleading information on their websites about Council Tax discounts is an excellent result for this investigation.

“Councils must recognise the pressures many carers are facing, with caring responsibilities leaving little time or energy to navigate complex systems or unclear guidance. We’re pleased to see positive change enabling carers to better access the financial support they are entitled to, and we would encourage carers living in the areas identified to check again to see if they may be eligible after all.” 

Who can get Carers Council Tax discount – and what councils were getting wrong

Live-in carers who can get the Carers Council Tax discount may include those where a parent is looking after an adult child, an adult child looking after a parent, and adult siblings looking after an adult brother or sister.

The person being cared for must receive one of six disability benefits (see below for more on this) – but it’s some of the most common disability benefits that councils were missing from their info.

We checked the online information – websites, PDFs, application forms – of over 200 councils (there were 318 responsible for Council Tax billing in England and Wales in 2025/26).

Our spot check found that 69 had incomplete or incorrect qualifying criteria. A further 80 councils failed to include any easily available information online about the qualifying benefits needed to get the discount.

The Government wrote to councils after our report

Following our investigation, the UK Government issued a letter to English councils in February 2026 which, among other things, encouraged local authorities to prioritise the accuracy of Council Tax support information, including the Carers discount.

Sir Ed Davey, leader of the Liberal Democrats, also said he would “talk to” councils displaying incorrect information about the live-in Carer discount after being quizzed about our investigation on ITV’s Good Morning Britain.

MSE was first alerted to the issue by a user who got in touch after telling us they were incorrectly rejected for the discount by their council and said they only managed to successfully claim with help from a specialist charity.

The likely cause of the problem was many councils hadn’t updated their websites since Carer rules changed in 2013

The live-in Carer Council Tax discount means the carer is disregarded for Council Tax purposes. So, if they were the only person in the house with the person they’re caring for, it’s as if there’s only one person resident, so that household would be eligible for the 25% single person discount (this discount could increase if the person being cared for is eligible for the ‘Severe Mental Impairment‘ disregard too).

To qualify for the live-in Carer discount:  

  1. Applicants need to provide at least 35 hours of free care a week to somebody in their household who isn’t a spouse, partner or child under 18.  

  2. The person being cared for needs to be receiving one of a number of qualifying benefits. Prior to the reforms in 2013, these were:

    – Attendance Allowance – higher rate.
    – Constant Attendance Allowance – increased amount.
    – Disability Living Allowance – care component, higher rate.
    – Disablement Pension – increased rate.

    Since 2013, it has also included the following – and it is these benefits that councils largely mistakenly excluded:

    – Armed Forces Independence Payment – any amount.
    – Attendance Allowance – lower rate.
    – Disability Living Allowance – care component, middle rate.
    – Personal Independence Payment – daily living component, enhanced rate.
    – Personal Independence Payment – daily living component, standard rate.

    The qualifying benefits needed for the live-in Carer Council Tax discount differ in Scotland, so this didn’t form part of our investigation.

Our investigation showed that a majority of the 69 offending councils wrongly stated that people being cared for on these benefits:  

  • Only qualified if they were being paid the higher rate of Attendance Allowance, Disability Living Allowance and Personal Independence Payment.  

  • Did not mention Armed Forces Independence Payment or Personal Independence Payment at all.  

  • Or, in the worst cases, it was a combination of these issues, plus more.

The full list of the 69 councils

This is the full list of all 69 councils that were displaying incorrect information, and which have now updated their online information. All now mention all six qualifying benefits, though some do use jargony language in places.

List of councils that had wrong info (but have now improved their websites)

Region

Council

East Midlands

Bolsover

Derby

Harborough

High Peak

Hinckley and Bosworth

North West Leicestershire

Rushcliffe

South Derbyshire

South Kesteven

West Lindsey

East of England

Braintree

Broxbourne

Huntingdonshire

North Hertfordshire

North Norfolk

Stevenage

Uttlesford

London

Barnet

Bromley

Camden

Haringey

Hounslow

Merton

Waltham Forest

North East

Gateshead

South Tyneside

North West

Blackpool

Burnley

Fylde

Pendle

Rossendale

South East

Adur

Brighton and Hove

Cherwell

Chichester

East Hampshire

Fareham

Gravesham

Hart

Runnymede

Rushmoor

Slough

South Oxfordshire

Spelthorne

Swale

Tandridge

Tunbridge Wells

Vale of White Horse

Wealden

West Berkshire

Windsor and Maidenhead

Worthing

South West

Cheltenham

Gloucester

North Somerset

Plymouth

Swindon

West Midlands

Lichfield

Sandwell

Staffordshire Moorlands

Stoke-on-Trent

Wyre Forest

Yorkshire and the Humber

Calderdale

North East Lincolnshire

North Yorkshire

Sheffield

Wakefield

Wales

Denbighshire

Merthyr Tydfil

List correct as of Tuesday 12 May 2026.

Further guidance on Council Tax support can be found in our Council Tax Discounts guide.

This article is from- https://www.moneysavingexpert.com/news/2026/05/council-tax-carer-discount-info-fixed/

OPA Cancer Charity are proud to announce its success at the Global Awards 2025/26, where the charity was honoured with two prestigious titles: Healthcare Support Non-Profit Organisation of the Year and Medical Awareness Non-Profit Organisation of the Year.

These awards recognise the organisation’s ongoing commitment to supporting individuals and families affected by cancer and wider health challenges, with a particular focus on oesophageal and gastric cancers. The recognition highlights its work in raising awareness, delivering education on the importance of early detection—because early detection saves lives—and ensuring vital information reaches communities who need it most.

Alongside its awareness and education work, OPA Cancer Charity also provides essential support to patients, caregivers, and families who are already living with cancer, offering guidance, compassion, and practical assistance throughout their journey.

Operations Manager Maggie Robinson said:
“I am incredibly proud of what our team at OPA Cancer Charity has achieved. Receiving both the Healthcare Support Non-Profit Organisation of the Year and Medical Awareness Non-Profit Organisation of the Year awards at the Global Awards 2025/26 is a significant recognition of the hard work, commitment, and passion that drives our mission. These awards reflect our ongoing dedication to supporting communities and improving access to vital healthcare information and services.”

OPA Cancer Charity remains committed to building on this achievement, continuing to raise awareness, provide education, and support those affected by oesophageal and gastric cancers, along with their families and caregivers.

Together we can make a difference!

It is with sadness that we share the passing of our lovely Chairman, John Campolini, who died on Saturday 25th April 2026.

John was a valued part of OPA Cancer Charity, and we are grateful for the time, dedication, and support he gave to the organisation over the years. He will be remembered for his kindness and commitment to our work.

Our thoughts are with his family and friends at this time.

John will be greatly missed by everyone at OPA Cancer Charity.

A skiing enthusiast who lost part of his stomach and oesophagus to cancer is urging others with persistent heartburn or swallowing issues to get checked. 

Dad of two, John Hatton, now 57, from Leicestershire survived stage 3 oesophageal cancer after undergoing aggressive chemotherapy and life-changing surgery at Royal Derby Hospital two years ago. 

He was fit, active, and had no major health concerns except the occasional heartburn which came and went over the years.

Now, two years on from his surgery and during Oesophageal Cancer Awareness Month this February, he is urging others not to ignore persistent heartburn or difficulty swallowing, symptoms he now knows could be signs of something far more serious – after a trip to the doctor in September 2023 with a suspected chest infection led to an urgent hospital referral.

 “The doctor came to see me on the Thursday morning and said, ‘It’s not great news really, John. We found a lump on your oesophagus. I’m pretty certain it’s cancer.’,” said John. 

He underwent aggressive chemotherapy and major surgery at Royal Derby Hospital, losing a third of his stomach and 8cm of his oesophagus. “It hit me like a ton of bricks,” he said. “I worried about my girls, about not being here for them.”

Mr Ahmed El-Sharkawy, Oesophagogastric Surgeon at Royal Derby Hospital and lead for the OGI cancer multi-disciplinary team at UHDB, said: “Sadly, we often see patients presenting at a late stage when fewer treatment options are available. 

“Symptoms like difficulty swallowing — where food feels like it’s getting stuck anywhere along the food pipe — unintentional weight loss and persistent indigestion, or heartburn/acid reflux that lasts for several weeks or especially if it doesn’t improve with medication should not be ignored. 

“John’s story, is an important step in raising awareness and encouraging people to seek medical advice sooner.”

Oesophageal cancer is the seventh biggest cancer killer in the UK, yet awareness remains alarmingly low. In 2020, 70% of newly diagnosed oesophageal cancer cases occurred in men. Men also accounted for about 70% of oesophageal cancer deaths in the UK.

Many, like John, dismiss persistent heartburn, unknowingly masking symptoms with over-the-counter treatments instead of seeking medical advice.

In 2022, 824 people were diagnosed with oesophageal cancer at provider hospitals across the East Midlands, with 80% of those being diagnosed at a later stage, meaning treatment options are less effective.

In spring 2025, that led the NHS in Derby and Derbyshire to partner with national charity Heartburn Cancer UK on a targeted campaign in Derby city aimed at urging people to seek medical advice if they have persistent heartburn >.

John shared his story as part of that awareness – and thankfully, his experience has a positive ending. Just seven weeks after completing treatment in 2024, he was in Paris watching the Olympics, and less than a year post-surgery, he was back on the ski slopes.

His next goal? “My daughter might get the chance to compete with her swimming team in Dubai this year. If she does, I’ll be there to watch her. That’s my new target. And I plan to hit it.”

One person who strongly supports John’s message about getting persistent symptoms checked is Prem Singh, Chair at UHDB. Prem – who first joined the NHS nearly 50 years ago and became UHDB Chair in 2024 – was recently treated for oesophageal cancer himself, making this Oesophageal Cancer Awareness Month especially meaningful.

“John’s story is so important, and I’m grateful to him for speaking up,” said Prem, pictured below. “My own cancer was picked up because I was already under surveillance for another condition, which also began with heartburn. That monitoring meant the cancer was detected early. It’s a reminder that if something doesn’t feel right, or symptoms persist, getting them checked could make all the difference.”

“Treatment can be tough – I had chemotherapy and major surgery last August – but staying positive, leaning on support from friends and family, and keeping active all helped me through. So did having things to look forward to, like recent time away and seeing relatives. My faith has also been a real source of strength, and it’s important to acknowledge the emotional as well as physical impact of what people go through.

“I returned to work at the Trust in January, and it’s been wonderful to reconnect with our fantastic teams. Having spent my whole career in the NHS, I know how deeply our colleagues care about their patients. I’m profoundly grateful for the exceptional care that saved my life – and I would urge anyone with ongoing or unusual symptoms not to ignore them. Getting checked early truly can save lives.”

This article is from UHDB NHS – Skiing fanatic John urges people with persistent heartburn or swallowing issues to get checked this Oesophageal Cancer Awareness Month | Latest news | University Hospitals of Derby and Burton NHS

What an incredible afternoon celebrating 40 years of the OPA Cancer Charity at the Midland Suite, Macdonald Burlington Hotel — the very place where our journey first began.

A heartfelt thank you to everyone who joined us, supported us, and helped make this milestone so special. Your presence, warmth, and dedication to our cause mean more than we can say.
We were honoured to welcome our Patron, Fiona Wade, whose support continues to inspire us.

Here’s to four decades of community, compassion, and progress — and to everything we will achieve together in the years ahead.

Thank you for being part of this memorable day – together, we are making a difference! 💜

Brief overview:

The Cancer Prevention Group at King’s College London need to hear your views on a large-scale new research project they we will be running.

Click here, or on the image below, to complete the short survey (by the 11th August). Your input is greatly valued.

Thank you for your cooperation.

Best Wishes,
Team OPA

Older people with unexplained fatigue or mental health problems should be offered a vitamin B12 test, according to our latest guidance. Our draft publication offers evidence-based recommendations on how to diagnose vitamin B12 deficiency and which treatment option to use. It recommends that patients should be offered a blood test if they have 1 symptom and at least 1 risk factor. One in 10 people over the age of 75 have a vitamin B12 deficiency, which can lead to anaemia, blurred vision, impaired balance and delirium. Up to 46,000 people could benefit from being diagnosed.

Consultation on our draft guideline is open until 5pm on Tuesday 22 August 2023.

https://www.nice.org.uk/guidance/GID-NG10176/documents/draft-guidelinedraft-guideline (nice.org.uk)

Thank you to Ray Clark, who is holding another fundraising charity night where a donation will go to the OPA!

The night will include signing along with Ray to hits from the 60’s and 70’s and feet tapping to the best of brass, Swinton Training Band.

When? – Saturday 16th September 2023 @ 7:30pm
Where? – The Kirk Theatre, Pickering

Tickets are £10 and can be purchased online – https://kirktheatre.co.uk/ or by calling the box office on 01751 474 833.

Research Study – Breath Analysis for Diagnosis of Oesophageal Squamous Cell Carcinoma (OSCC)
We are engaged in a collaborative effort with a clinical research fellow, Ms Sameera Sharma, from Professor G Hanna’s team at the Department of Surgery and Cancer, located at Hammersmith Hospital. The objective is to develop a breath study that can effectively detect oesophageal squamous cell carcinoma (OSCC) at an early stage. The study will be conducted across multiple centres in the United Kingdom and will involve the recruitment of both OSCC patients and non-cancer controls.
To ensure the study’s success, we are seeking to establish a project advisory group comprising members of the public. Their valuable insights and personalised input will be instrumental in shaping the study’s direction. This group will play a pivotal role in the ongoing management of the study.
Please see attached information for more details:
If you are interested in being involved in this exciting research, please contact Sameera Sharma at [email protected].