Trustees:
John Campolini – Chair
Stephen Brinkworth – Honorary Treasurer
Professor Janusz Jankowski
Professor Grant Fullarton
Will Docherty
Ron Lumb
Clinical Advisory Patron:
Ed Cheong
Charity Patron:
Fiona Wade
John Campolini – Chair
John was diagnosed with Oesophageal Cancer, and underwent surgery at St Thomas’ under the great care of Bob Mason and James Gossage plus a whole raft of dedicated and wonderful medical staff. By way of background information John comes from an Italian immigrant family from a small village in the South of Italy and like lots of Italians in the 1930’s who came to the UK where his parents made and sold ice cream! He left school and after a number of jobs from a musician to mechanical engineer in the pharmaceutical industry retired after 36 years in the criminal justice system. John’s Italian heritage is very important to him as are his son, daughter and two granddaughters. John has belonged to the Knights of St Columba, a Catholic charity, which looks after the less fortunate in our society for over 51 years and is a licensed radio ham (call sign G0CRI).
Since being cured of his Cancer, John has, at every opportunity when speaking to groups of people, raised awareness of reflux and the consequences of ignoring the problem and at the same time urging people suffering from reflux to ask to be referred to specialists as soon as possible. Sadly John’s father died from Oesophageal Cancer over 30 years ago and his 45 year old son is being monitored for the same condition.
“My hope is that we support each other in various ways such as meeting up, having discussion groups, inviting specialist speakers to our meetings”
Professor Janusz Jankowski – Trustee
MBChB MSc MD PhD PGCE PGCM AGAF FACG FRCP SFHEA
Professor Janusz Jankowski is a doctor, educationalist, researcher, writer and health policy expert. He is a board member of several health and sports charities. His career aim has been to build large global multidisciplinary networks to optimise informed public life choices.
Professor Grant Fullerton – Trustee
Grant is the former lead Oesophago-Gastric Consultant Surgeon in Glasgow Royal Infirmary with major interests in management of malignant and complex benign upper GI disease. Grant is a former Associate Professor of Clinical Surgery with extensive research interest in benign and malignant upper GI disease. His particular interest is in the field of Barrett’s oesophagus including its role in cancer development and treatment with Radiofrequency Ablation.
Grant has now taken up an advisory post with the Scottish Government as the Clinical Lead for General Surgery. Grant has managed to get the Cytosponge introduced in NHS Scotland as a National Service. The Cytosponge is a new technique to screen Barrett’s oesophagus patients which has been a great recovery tool during this pandemic.
Stephen Brinkworth – Trustee/Treasurer
Born in Cardiff, spent my childhood in the Rhondda Valley, where I attended the local Grammar School, before attending Cardiff University to study economics.
On leaving University, joined NatWest Bank when I spent the next 31 years, initially working in various Branches in S Wales and Bristol, before moving to London in 1984 to a Head Office Dept. Took early retirement in 2003 following the Bank’s acquisition by RBS.
Upon leaving the Bank, joined the local NHS Hospital and spent 6 years as a Project Manager implementing several HR related projects.
In 2010, diagnosed with Oesophageal cancer, but fully recovered following surgery at the Royal Surrey Hospital in Guildford.
A keen sportsman over the years, having played a high level of Soccer and then Squash, and has now progressed to Lawn Bowls, and spends many hours each week on the Bowls green, not only playing but is involved in the greenkeeping duties of his local Club.
Also involved as the Treasurer for a local Probus Club, and still involved with the local Squash Club as Treasurer/Secretary.
Will Docherty – Trustee
Born in Inverness, I have a German wife and a teenage stepdaughter. I am a Chartered Quantity Surveyor and having worked for over 33 years for two firms, I set up my own company in 2020. I am now familiar with the steep learning curve associated with starting out in business!
Through my career I have lived and worked in various locations in the UK as well as Canada and the United Arab Emirates. Whilst I was living in the UAE, I was diagnosed with stage 3 adenocarcinoma of the oesophagus. As an expat, I was fortunate that my employer’s medical insurance policy allowed me to have the initial diagnosis and neoadjuvant radiochemotherapy treatment at home in the UAE, before undergoing oesophagectomy surgery by Professor Arnulf Hölscher in Germany.
As I recently passed the five-year anniversary of my diagnosis, I wrote a post on social media and it is staggering to see the size of the team involved in diagnosis, treatment and rehabilitation.
In my case, it involved many teams from five hospitals in three countries – and that is just the people I saw. In addition, there are countless more behind the scenes, each making a valuable contribution to the team effort, albeit often without acknowledgement.
The excellent medical support was supplemented by family, friends and colleagues, which was paramount in allowing me to focus on recovery and I thank them all.
As a Trustee of the OPA, I want to increase awareness of this disease to allow more early diagnosis and therefore improving the prognosis of those who will be affected in future.
Ron Lumb – Trustee
I currently run my own First Aid and Fire Awareness business. I have been a Firefighter both locally in the retained service and also at Farnborough Airport serving for 16 years. I also trained as a Co-responder in Hampshire, working alongside Paramedics.
I am a father of three and am actively involved in their lives and this is what brought me to fight against my diagnosis. This devastated my family in 2004 when I was struggling to swallow so got checked out at our local hospital after a trip to my GP. I then had chemo and an oesophagectomy in 2004. Less than a year later I was told I had secondaries in my liver. Chemo was re-started and the specialists decided on a dissection of the left lobe. After a long road to recovery, I am here to tell the tale and give support, advice and hope to those going through the same.
The reason I offered my help to the OPA was to encourage people to speak about their diagnosis, prospects and to give help, advice, hope and encouragement as there was very little in the way of after care for oesophageal patients. For me it has been trial and error and finding out what works best for people individually and offering them ideas that may not have otherwise been available.
Edward Cheong – Clinical Advisory Patron
Ed is a consultant oesophagogastric and laparoscopic surgeon at the Norfolk & Norwich University Foundation Trust, who specialises in minimally invasive oesophagectomy (MIO) for cancer. Ed graduated from the University College Cork in Ireland, did his specialist registrar surgical training in the Eastern region in England, and then he completed a year fellowship in minimally invasive oesophagectomy in Pittsburgh, USA with Professor J. Luketich. The year Ed spent at the University of Pittsburgh Medical Center in Pittsburgh was the most illuminating time of his career. It enabled him to set up MIO and endoscopic treatment for early oesophageal cancer, such as radiofrequency ablation of the oesophagus and endoscopic mucosal resection. Ed is also the Upper GI Cancer Lead at the Norfolk & Norwich University Foundation Trust. For the last four years, they changed the way things were done for oesophageal and gastric cancer surgery; and today they have one of the best outcomes after oesophageal and gastric cancer surgery in UK. Outside work, Ed love sports! He does long distance running (Half marathons races) and cycling; Ed used to play international school rugby, and now he watches rugby and football with great interest.
Fiona Wade – Charity Patron
Personal message from Fiona Wade (Actress):
“Some years ago I lost my father to oesophageal cancer. He was such an amazing person, the best father I could ever wish for and it was so sad and shocking when he was diagnosed. I had never heard of this type of cancer before and I always feel to this day that if we had been more aware of oesophageal cancer or reflux disease then for sure earlier diagnosis would have made a huge difference and maybe saved his life. Early diagnosis by spreading awareness is absolutely key in saving lives from this cancer, so please help us to carry on doing all we can to make people more aware and help us to save lives and to support and reassure every patient who needs our help. Thank you.”
View our legacy leaflet here which includes Fiona’s Story
View our Fiona Wade Patron page here which includes videos featuring Fiona
